Tuesday, December 20, 2011

We've come a long way

It was a year ago today that we got two pieces of hard news. One, my uncle lost his battle with cancer on this day a year ago. It was also this day that we were first approached by our daughter's pediatrician about the possibility of autism.

It's been a long, scary journey. She's making a lot of progress but a lot of it is in small things, things that only her teacher and her daddy and I can see. There's still those things that eat at me every day, but in the grand scheme of things those probably won't hurt her as much as they will me. For now I have to remind myself that we've got to help her master the things that will help her before we worry about the things that bother me.

I just wanted to write a quick update. I'll share more later.

Sunday, December 11, 2011

Christmas time's a-coming!

Sweet'ums has fallen in love with the holidays. She embraced Halloween and now, Christmas. She's been after us for weeks to put up the tree, even though we already put up the little one in her room. Her room is encircled with lights. But she keeps wanting more.

So we finally broke down, cleaned up the corner, and pulled out the tree. It's a much bigger tree than I had wanted (her daddy pulled rank on me) and it takes up a lot of space. But, she loves it and her daddy loves it. What can I say?

Her daddy also got his way when it came to the lights. He wanted colors; I wanted white lights. He got his colors since Sweet'ums was our tie-breaker. At least in the end I got my way with our ornament theme. Gold ornaments, red bows, and our ornament collection we add to each year. When the lights are on it suits him; when the lights are off it suits me.

Tonight Nice Guy put up the tree and Sweet'ums put up ornaments. I took pictures. It was a nice little evening, all in all.


The other night we decorated gingerbread men. She did hers all by herself, except for the icing. For that she showed me where to put it.


We've had some fun and she's finally starting to settle down a bit. Of course that might change when she gets up tomorrow but at least, for the weekend, she was in a pleasant mood. She was huggy and sweet. She even had a sense of humor, except for when her daddy put the juice she didn't want into the fridge. Oh, how she screamed and cried about that--you'd have thought we were trying to cram her in the fridge instead of the juice cup. But really, she was just tired and as soon as one of us sat down to hold her she fell right asleep.

In case you need a laugh, though, here's a quick story. This afternoon I heard noise in the bathroom and asked NG to go check on Sweet'ums. When he went in there she was on the potty but she hadn't put her little seat down. Instead, she was sitting on the big seat, holding on for dear life. She slipped a little and managed to catch herself before her bottom hit the water, but she was in a precarious situation. She looked at NG, kicked her little feet and said in a panicky little voice, "I don't like to swim!"

I hope everyone's doing okay. I know I've been lazy about blogging lately; hopefully I can get motivated again soon!

Tuesday, December 6, 2011

Better, but not

 First of all, I want to apologize for the novel I'm about to write. If you have children, a spouse, or a life you'd like to get back to sometime before the end of the year, I'd advise skipping this post entirely.

And now, onwards...

In some ways I'm feeling better than I was the other night. I think a lot of it is just that I bottle up my emotions when Sweet'ums is home and when she's gone everything I feel comes bubbling out. So right now things are okay... Come Saturday night, when she's with my mom, things might be different.

I talked to Nice Guy about everything. Fortunately he cares and he seemed genuinely surprised that I was that bad off. I mean, he knew I was really struggling, but didn't seem to notice the whole quiet-desperation-thing going on. He wants to help me feel better, fix things, whatever. I appreciate that. He even says that he understands my feelings and the problem isn't all in my head.

What's frustrating me right now is that we are exactly back to where we were the last time I bared my heart to him about how things weren't where they should be. Basically, I do the foot work of trying to figure out how to fix things, he shoots down the ideas of whomever I've just read as being silly or nit-picky or something, then he makes some kind of pittance offer about something to do that he deems to be romantic (or something, who knows what's going through his head).

Example: I found this article while browsing AOL news today. I told him about it and said I thought she made some good points and maybe it was worth a shot. So, after doing our running around this evening we got back home and I read the points to him. He was all for numbers 1, 4, and 6. Now #4 is no biggie for us. I've mentioned before that one of our projects last year to help us with our relationship was to start a book of things we love about each other. We hit the one year mark back in August and we're averaging an entry a day (which translates to us alternating days), but I don't remember exactly how many we managed. To me, #4 was just a version of what we were already doing. #6 was pretty standard advice that you'd get from any number of relationship counselors, sex therapists, or elderly, still-head-over-heals couples. Again, no biggie, as long as you have a lock on your bedroom door to prevent mishaps involving an autistic four year old and one of you doesn't work ridiculous hours thanks to shift work. Oh, and if you're not both like 60lbs overweight. That too. #1 makes some good points and it's all about taking responsibility for yourself and how you react and how you feel and helping your partner know what to do.

Numbers 2, 3, and 5 he had a problem with. #2 is all about intimacy, communication, and ongoing relationship improvement. #3 is about admitting what gets you going and acknowledging that you and your partner aren't carbon copies of each other. #5 is about accountability, in my mind--no lying about who you're with or what you're doing, and if you're honest about what you're up to there's no need for the other party to get defensive or suspicious. These three he has a problem with. #3 I can kind of see his point--I'm not quite sure why she put that in there if she wasn't going to elaborate on what to do with the information. Are we supposed to indulge each other's desires even if we're not into it? Is it just about knowing each other's interests and not judging? Huh? His problem with #5 didn't make much sense to me--it's something we do anyway, something we've always done, but he interpreted her putting it in writing as being "up her husband's butt" and unnecessary. So if it's something we're already doing, and he's fine with it in that context, why have an issue with someone else saying it's important to be able to do in a relationship? The one that really annoyed me that he tried shooting down, though, was #2. He said that it was nonsense, basically, that it was too many questions and the vow revisiting thing was too much and nit-picky and pointless.

You know what I noticed, though? Numbers 1, 4, and 6 were driven by personal responsibility, knowing yourself, and pushing yourself. Numbers 2, 3, and 5 were about being honest and intimate with each other. Group A, the group he liked, was the group of things I can do for myself. Group B was the group of things that would require him to actually put some effort into things too, particularly #2, the one he disliked the most.

His consolation prize for not being all into this? "Hey, is there a movie or something you want to watch?" After I said no, not really, and we sat here for a while not really talking about much, he decided he was going to bed. He came back out a few minutes later and asked if I wanted to talk, but by that point I was pretty perturbed and, to be honest, a little hurt, and told him no, just to go on to bed.

Which leaves me exactly where I was last time we had that kind of talk. I pour my heart out, he pours out his, he seems honestly shocked that I'm THAT upset about something, he promises to try harder and pay more attention, and then when I start making suggestions they get shot down. Eventually he forgets all about trying harder and things slip a little further downhill so that next time I have a meltdown, we're even further from the solution. And me, I just get more and more despondent and give up, instead of trying to work on things on my end like I should.

So at the end of the night, I'm aggravated. I feel like things are never going to improve and maybe I should just tell him not to bother, that we should just give up and find a lawyer and go be miserable each in our own places. He's bored--he admits it freely--so maybe I should just turn him loose to go get his own apartment where he can play his video games all day and goof off with his cousin on their off days. And I can be lonely and unappreciated with or without him--I'm already getting good at it.

No, we're not splitting up... At least, I don't think so. This is probably just a rough patch that I'll have forgotten all about the moment Sweet'ums stops stressing me out and I have a way to get out of the house once in a while.

I'm going to go update the Froggy Blog really quick on something that I realized about Sweet'ums. I understand if you're not interested after such a long post... At any rate, if you're still here, I hope you have a good night and I appreciate you actually sticking with it. I'm going to try to find something positive to say soon.

Sunday, December 4, 2011

More Sweet'ums

Sweet'ums is doing well at school. She has already met two of the five goals for the year listed in her IEP. Her teacher is confident that she'll meet the rest before the end of the school year. Most days she's good to the other kids in her class and tries to defend them. She's had a couple bad days at school but her teacher takes them in stride and says not to worry, they all have bad days now and then. I struggle, though. On one hand I don't believe in allowing children to get away with disrespecting their teachers and classmates. On the other, I think her teacher is right--I don't know if she even remembers what she did wrong by the time she gets home. Honestly, I'm not even sure she relates her bad behavior to being a problem for anyone else. I know she's young yet, but I remember understanding at her age that my actions could hurt or disappoint others. She doesn't seem to "get" that yet. So I have no idea whether to discipline her or not, and even if I were to try, I have no clue how to go about it. Punishment seems to completely roll off her back, beyond simply making her angry. She doesn't seem to internalize any of it or connect it to her behavior.

Other than that, things are more of the same. She has her meltdowns, refuses to eat, doesn't want to go to bed at night and is a pain to get up in the mornings. Sounds like a teenager, right? Heck, she even begs for my keys when we get back to the house in the afternoons. The only difference between her and a 16-year-old is that she wants to unlock the front door, not take the car. She's getting a little better with her sound sensitivity but she seems more afraid of random things than ever before. She's talkative most days now, which is a step in the right direction.

She's obsessed with holidays. She loved Halloween and now she's psyched about Christmas. We got her one of those Elf on the Shelf things. We named it Holly and it goes everywhere with her. We told her that every night Holly calls Santa to tell him whether Sweet'ums was good or not during the day. Sweet'ums seems to remember this, but it isn't a deterrent to the bad behavior. It's like maybe it's an afterthought, or maybe she knows Santa is paying attention but she can't help herself anyway. I don't know. There's so much I don't know because she doesn't tell me anything about how she thinks. Anyway, she's also obsessed with Christmas lights and Christmas trees and the whole thing. I think gifts are just a consequence of the holiday to her, not the driving force like it is for a lot of kids. She just likes the decorations and festivities. She's even got a string of lights up in her room and she insists on having them on at bedtime.


So, here's a few pictures before I go. Enjoy!



It's hard work being so darn cute, and there's no better place to take a nap than on Daddy's feet on the end of the recliner.


Not quite what the author had in mind, I'm sure, but at least she's enjoying her book!

Saturday, December 3, 2011

What the heck do I call this?

I'm sorry I haven't been around much lately. My heart just hasn't been in it, and there hasn't been much newsworthy stuff going on. Each day is more of the same and while some days have definite pick-me-up qualities, I generally just feel more bogged down.

Nice Guy and I talk a lot and we both feel this way. We think it's just that we're itching for change but change is hard to come by. Shaking up our living situation would help a lot but that takes money. We've talked about the possibility of having another baby but that would bring up a million issues, not the least of which being that of actually getting pregnant. I've got PCOS which means, in short, that fertility could be a teensy little problem. There's always home improvements and redecorating, but that can also get pricey and it's a little pointless if we're just going to move anyway.

Some days it feels like everything is passing us by. We're trying to do more for Sweet'ums than our parents were able to do for us but at the end of the day, we have even less--at least we had yards to play in and siblings to harass growing up. I see people younger than us working half as hard and accomplishing twice as much, and it's frustrating--my husband works long hours doing physically exhausting work, yet I see my peers getting financing for houses they can't afford because their boyfriends have military experience. Never mind that the military rejected my husband because of his feet after promising to take him if he lost fifty pounds (which he did). Never mind that we're not even looking in the beyond-our-means price range.

We're already walking the path of our parents--work hard for an entire lifetime and at the end of it all, have nothing to show for it.

I whine and cry a lot on here, but I think the one thing nobody in my Real Life understands is just how emotionally exhausted I am. I wake up every day to get a kid dressed for school who refuses to cooperate four out of five mornings. I get to sleep half my useable day away because I couldn't sleep the night before, because said kid wouldn't go to sleep or maybe wouldn't stay asleep or, on some nights, because my body refused to sleep since it just knew she was going to wake up the moment I dozed off. Just like tonight. She's not even home, but I can't sleep because my body is used to not sleeping. So after I sleep my morning away I get to go get her off the bus and fight with her just to get her through the front door. She hates being here. Then I get to try to get her fed, bathed, and at least tucked into bed at a decent hour, all while being fussed at and fought with and sometimes screamed at. I never get to hear an "I love you, Mommy!" even though once in a while she'll say it for her daddy. Half of the time (literally) I do all of this on my own and then get to crawl into bed either alone or next to an already-sleeping husband. He's got his own stress to deal with so in the midst of it all I'm lucky some days if we remember to give each other a kiss in passing. He says that he loves me all the time, and that helps, but I think my biggest wish in this household is to get more emotional feedback from them both. Sweet'ums will show affection but usually it's buried deep in all of the screaming and fussing. It feels more like a slap in the face, most of the time, sort of like how it felt as a kid to get a spanking and then have Mommy or Daddy want to hug on you. It's the most screwed up feeling to have her scream half the afternoon, give me a hug, and then go straight back to screaming. It's like the eye of a hurricane, having that moment of calm and knowing that what's on the other side is even worse. And when it comes to her daddy... Well, in a nutshell, he's convinced that he's no good at romance and sweetness and he shuts himself down before he even gets started.

I'm thankful for my family. That's what stings the most. I love them so much. They're my whole world. I wouldn't trade them for anything. Whenever I'm happy, they're the reason I feel that way. But there's so many other emotions swirling around all the time that are anything but happy, anything but thankful. I feel like the world's worst mother for it. There are women in worse situations than mine, women parenting alone or women with kids with serious disabilities or women with no resources whatsoever, who still manage to do it all with a smile. How do they do it? How do you get up in the morning knowing what's ahead and not just die a little inside? I should be so thankful that my life isn't like theirs, that somewhere down the line things will get better, but I can't get past everything that feels like my life is lacking.

I guess I'm overly dramatic. I guess I let things get to me too much, or maybe I exaggerate them in my own mind. I tell myself that a lot, that this is all in my head. I've started a half-dozen posts just like this one and just deleted them, telling myself that nobody wants to read it and that this isn't really what my blog is for. But you know, this stuff is the truth about how I feel. Why hide it? I feel like a wreck about 80% of the time. To hear my husband tell it I look like a wreck most of the time. So I guess in at least some measure, this is real. My reality.

Everyone goes through this, I'm sure. How do you get past it? What am I doing wrong?

Tomorrow I'm going to paint on a smile and try to post something happy, maybe with a few pictures of how big Sweet'ums is getting. I'll go over and update the Froggy Blog since it has been a while and her progress is really what everyone would rather see. But for now, for this moment, please think of me. Say a little prayer for me. Pray that Nice Guy and I find some little spare moment full of something to sustain and renew us. Pray that I can dig deep and find whatever it is that gets parents through the dry spells.

Wednesday, November 9, 2011

This week

Nice Guy's granny died Monday evening. We just happened to be at his mom and dad's when the call came in. Viewing will be Thursday, and funeral Friday.

He's holding up. He thinks he has to keep it all together for everyone but I've tried telling him that what they don't know about won't hurt them and he can cry when it's just us. So far he's mostly just having those little moments--you know, when you're at the grocery store and you see ginger snaps and your eyes well up because that's what They used to buy? Maybe, in a way, that's the better way to handle it. I'd rather have memories that sting than the crushing sadness of goodbyes not said.

That being said, I'm on the verge of a breakdown. I love my baby but she has driven me far beyond insanity. I'm not sleeping and I'm trying to keep things together for NG and take care of her too. I'm trying to make food plans for after the funeral since I'm one of the few family members who isn't preoccupied with grieving. I don't even know what I'm going to wear to this thing. And what is Sweet'ums doing? Acting up. Acting out. Her teacher is out right now and there's a sub who doesn't have a clue. I think that's the source of a lot of this. Combine that with the stress at home right now and I'm sure she's really unsettled. And of course, and unsettled baby means an unsettled mama.

On the other hand, I do have a couple pictures to share.



These are from Halloween so I'm a little late sharing. Just thought you'd enjoy. Even though at home we've lost a little of the progress we'd made, she's still doing really great at school. She's even made a friend who, according to her teacher, she chats with constantly. She also stood up to a mean boy the other day, but you can read all about that on the Froggy Blog.

I'm trying to catch up with blogging but this next little while might be a little rough, so if you don't hear from me don't panic. Holidays are coming and NG is going to have a rough time with them, I already know. Christmas, especially, since his granny always did a Christmas party. I'm going to do what I can to help them but it's going to be rough on everyone, so keep them in your prayers. They're going to need all the prayers they can get if I'm the only level-headed adult around. Poor people. :(

How are y'all doing? Please, fill me in. Leave me comments telling me what you're up to this week and weekend. Tell me about your weather, even. I'm just desperate for a little piece of normal right now.

Friday, November 4, 2011

Halloween, and other scary things this week

First off, go check out the new post at the Froggy Blog to read about Sweet'ums' latest... umm... adventure. :) Trust me, it's worth it.

We're having a rough time. We just got over having car problems and now it's looking like Nice Guy's granny won't make it through the weekend. We've known for a long time now (2 years or so) that this was coming but this will be the first grandparent he's lost. It's hard on him and he's trying to keep it together for his sisters and his cousins. Then Wednesday night he fell ill and hasn't shown much improvement. We don't know if it's food poisoning, stress, a bug, or something else. We're hoping tomorrow is better.

I'm also dealing with another round of anxiety. I'm not sure what exactly has triggered it, unless maybe it's a time-of-year thing for me. It seemed to start when a friend of mine posted something on Facebook that got to me but I don't know if I was already having issues and I just noticed it then, or if that actually started it. I'm tired, worried about everything, and everything feels like a fight. I'm about ready to talk to someone, if I can find a good doctor around here.

I've also been thinking a lot about my uncle. It's been almost a year that he's been gone, and I've managed to not think too much about it until now but it's starting to creep up on me. It has been an entire year since I saw him for the last time. I can't help but think of all the time wasted by hard feelings over his sexuality, of all things. Something that should have mattered only to him and his boyfriend but because the Bible tells us so it was taken as a personal affront. He was plagued by addiction and seemed troubled and conflicted about those lost years too. Now he's gone and not plagued by those things anymore, but I always will be. He will always be the first brick pulled from the wall of religion I put up as a kid. That wall blocked out anything the church or family considered to be "other". That wall blocked anything they deemed sinful. He made me pull out the first brick. Because of him I had to stop and evaluate how in the world we could separate loving the person from condoning a lifestyle. Thanks to him I learned that the world really is far more complex than the simple black-and-white that the folks at church want us to believe. And thanks to him, I was opened to the idea that maybe salvation and spirituality and a person's relationship with God might be much, much more personal and complex than the church wants us to believe. I've thought about it a lot the last day or two and I can't shake it out of my mind.

So yeah, it's been a long week. I'm really ready for a break. Sweet'ums will be staying with my mom this weekend so depending on how things go and what all happens with NG's granny you could be hearing from me again very, very soon.